Human Technology and Organisations Research Group

Tag: persuasive System Design model

My Upcoming PhD defense – ‘Care for Caregivers: Designing IT Applications for Informal Caregivers’

9 September 2024 /

On Friday, September 13, 2024, at Uppsala University, I will defend my Ph.D. thesis titled Care for Caregivers: Designing IT Applications for Informal Caregivers. This research contributes to the field of Information systems and informal caregiving, focusing on how technology can be used to support informal caregivers—those who provide care to their relatives with illness or disabilities.

What is the Thesis About?

The thesis explores the development of IT applications to support informal caregivers. Informal caregiving often involves immense emotional, physical, and logistical challenges, all of which can take a toll on caregivers’ well-being. By identifying and analyzing the needs of caregivers, this research developed two primary IT solutions: an eCoaching platform and a web-based health application named Carer eSupport. These tools are designed to offer personalized guidance, resources, and support systems.

To design these applications, the thesis incorporates Persuasive Design and Positive Design approaches. Persuasive Design leverages behavioral psychology to encourage positive actions, while Positive Design focuses on enhancing emotional well-being. This research also critically analyzes their application in the caregiving context.

Why It Matters?

Caregivers play an essential yet often undervalued role in the healthcare system. They provide care, support, and comfort to their relatives in need, often with little formal training or external support. Despite the importance of their work, caregivers frequently struggle with balancing their responsibilities and maintaining their own well-being. This research highlights the crucial role that technology can play in supporting caregivers, providing them with accessible tools that can alleviate some of their burdens.

By addressing the needs of various caregiver groups, including native Swedish caregivers, immigrant caregivers, and those caring for patients with head and neck cancer, the thesis offers solutions that are tailored to the diverse needs of different populations.

Key Contributions

The thesis presents several key contributions based on interviews, focus groups, and evaluations conducted with caregivers and healthcare professionals:

  • Comparative Analysis: The thesis provides a comparative analysis of the Persuasive Systems Design (PSD) model and the Positive Design Framework for creating IT applications for informal caregivers. It highlights the strengths and weaknesses of both approaches, offers an in-depth reflection on their design processes, and evaluates their effectiveness in meeting caregivers’ needs. Additionally, it offers recommendations on when to use PSD or Positive Design based on the caregiving context and provides practical guidelines for integrating both approaches to balance functionality and emotional support.
  • Adaptation of Frameworks: The research adapts the PSD and Positive Design frameworks specifically for informal caregiving, highlighting their relevance and applicability to this context.
  • Ethical Considerations: The thesis discusses the ethical implications of using persuasive and positive design techniques.
  • Literature Mapping: A systematic literature review is provided, offering crucial design recommendations and identifying facilitators and barriers to the implementation of IT applications in informal caregiving.
  • Proposing IT Solutions: The development, exploration, and evaluation of IT applications are also key contributions, including an eCoaching platform and a web-based health application designed to address and support the complex roles of caregivers.

The Role of Technology in Caregiving: What It Can and Can’t Do

Supporting caregivers with technology is an exciting idea, but it’s important to remember that technology has its limits. Caregiving isn’t just about tasks—it’s about empathy, understanding, and human connection. While apps and digital tools can make things easier for caregivers by providing information, resources, and reminders, they can’t replace the care and warmth that come from a real human interaction.

The truth is, informal caregivers are often expected to do the work of healthcare professionals, even though they might not have the training, time, or resources. This puts a lot of stress on them, leading to burnout and, in some cases, poorer outcomes for the people they care for. And not everyone has access to a strong support system, making caregiving even harder for people in marginalized communities.

So, while technology can help caregivers by making their lives a bit easier, it shouldn’t be seen as a replacement for proper healthcare support. Caregivers need more than just apps; they need real, systemic support from the healthcare system. As we move forward, it’s crucial that research and policy work together to find better ways to take this burden off caregivers. Until then, IT applications can hope to provide some respite.

The Defense Day

On the day of the defense, the opponent, Professor Tone Bratteteig from University of Oslo, presents my research and then we engage in a discussion. This is followed by questions by the grading committee members and then the audience.

The defense will take place at 13.15 in room B115 at Ekonomikum, Uppsala University. I’m looking forward to it.

E-Coaching for Informal Caregivers: Building Resilience and Well-being

11 September 2023 /
Closeup of a support hands

As we navigate through the complex experience of caregiving, it is often the informal caregivers, such as close friends or relatives, who become the unsung heroes of caregiving at home. These caregivers are the ones who provide the much-needed support and assistance that patients require to live life with some semblance of normalcy.

For informal caregivers, providing care for a loved one can be emotionally, physically, and mentally challenging. They often have to adapt to a new role as the primary caregiver, while also managing their own lives and responsibilities. Consequently, caregiving can take a toll on these caregivers’ well-being, with many experiencing stress and burnout. Interventions designed to provide support to these caregivers are thus crucial. To this end, our recent study identified important unmet needs of informal caregivers and provided design suggestions for a persuasive e-coaching application using the persuasive system design (PSD) model. The PSD model offers a systematic approach to designing IT interventions.

Using a qualitative research approach, we interviewed 13 informal caregivers and conducted a thematic analysis of the data. From this analysis, six needs were identified: monitoring and guidance, assistance in navigating formal care services, access to practical information without feeling overwhelmed, a sense of community, access to informal support, and the ability to accept grief. These needs formed the basis for suggested design features in an e-coaching application, using the PSD model.

However, we found that some needs could not be mapped using the existing PSD model. As such, we adapted the model to better address the needs of informal caregivers.

By identifying the needs of informal caregivers and providing design suggestions for an e-coaching application, this study offers support and hope for those navigating the challenging role of caregiving. The suggestions for e-coaching applications using the PSD model have the potential to ease the caregiving burden, as well as provide caregivers access to the support and resources they need to provide better care, which is an essential factor in improving both the caregiver’s well-being and the overall quality of care provided to patients. This study highlights the importance of providing support to informal caregivers and demonstrates the potential of technology-based interventions to improve caregivers’ lives. With further development and refinement, e-coaching applications designed based on the PSD model could become valuable tools for supporting and empowering informal caregivers.

Designing Persuasive eCoaching Application for Informal Caregivers in Sweden: My work in ENTWINE

20 April 2023 /
ENTWINE – Informal Care

As I sit down to reflect on my experience with ENTWINE Informal Care, I am filled with gratitude for the opportunities that this Marie Skłodowska Curie Innovative Training Network (MSCA-ITN) funded by the European Union Horizon2020 has provided me. It’s been a journey of growth, learning, and collaboration that has impacted my personal and professional life in ways I couldn’t have imagined. The program began in March 2019, but my journey with the ENTWINE project began in October 2019 when I moved to the beautiful island of Gotland in Sweden. I was thrilled to be a part of this program as informal caregiving was already interesting to me personally, given that I had been an informal caregiver for my father for over a year. So, I have a personal motivation to work in this area. I am also interested in the field of designing IT systems, and I was delighted to find that these two interests aligned so well in my project in ENTWINE.

One of the most exciting aspects of ENTWINE was the opportunity to work with other PhD students hosted across five different countries in Europe. You may read more about ENTWINE and the research done here. The cohort was diverse, and we all brought our unique experiences and perspectives to the table. The training courses offered through ENTWINE were invaluable in helping us develop the skills and knowledge needed to conduct high-quality research in the field of caregiving. We received training in areas such as caregiving, persuasive designing, positive technology research methods, entrepreneurship, and many more. The courses were rigorous and challenging, but they were also fun and engaging. It was clear that the program coordinators had put a lot of effort into designing a curriculum that would equip us with the skills and knowledge we needed to contribute positively in our respective fields. Another highlight of the program was the opportunity to work with multiple industry and academic partners. We had the chance to discuss our work and learn from them through dedicated research secondments. My secondments were at the University of Twente and the University of Oulu, where I spent three months each. These secondments helped shape my PhD and helped form good collaborations.

AnhörigCare: An eCoaching Application for Informal Caregivers in Sweden

My PhD work focuses on designing a persuasive eCoaching application (AnhörigCare) for informal caregivers in Sweden. ‘AnhörigCare’ means caring for ‘anhöriga’, the Swedish word for relatives. Informal caregivers are individuals who take care of their sick family members or friends suffering from a long-term illness. Caregiving can be difficult and can affect the well-being of the caregiver and they often experience stress and anxiety. As a result, my research focuses on designing an eCoaching application called AnhörigCare for caregivers in Sweden to support them in their caregiving activities and assist them in self-care.

‘AnhörigCare’ means caring for ‘anhöriga’, the Swedish word for relatives.

Persuasive System Design

AnhörigCare was designed using the Persuasive System Design (PSD) model. The PSD model is a comprehensive framework created to assist in designing systems that can impact users’ behavior. It offers designers a methodical approach to designing persuasive IT applications that are tailored to the specific needs of caregivers, making them more effective in assisting them to achieve their objectives. It also presents a structured design strategy for creating appealing and practical interventions. Additionally, the PSD model offers organized design principles that can be utilized by designers. This model proposes 28 design principles grouped into four dimensions: primary task support, dialogue support, credibility support, and social support. The first dimension, primary task support, aims to assist users in accomplishing their intended behavior. The second dimension, dialogue support, employs design principles that encourage users through feedback and interaction with the application. The third dimension, credibility support, employs techniques that enhance the application’s perceived credibility and trustworthiness by the user. The fourth and final dimension, social support, uses methods to leverage social influence (illustrated in the figure below).

Persuasive System Design model

The Design Process

AnhörigCare aims to provide access to practical information, access to formal services related to caregiving, and access to an online forum that can connect caregivers with each other to feel part of a community. This figure illustrates the activities in this project to design the final version of AnhörigCare. 

We started with a review of literature. The extant literature points to access to information regarding caregiving, access to formal services to assist caregivers, feeling of community, words of acknowledgment and encouragement, self-care, and informal peer support as major needs of caregivers. The descriptions of their needs were compared with the persuasive design principles from the PSD model. Based on this match, design principles was chosen to meet their needs, creating the first version of AnhörigCare. Expert evaluations were then conducted on this version and changes to navigation and presentation of content were made. In the next step, we interviewed caregivers in Sweden to elicit their needs for an eCoaching application. Based on these needs we presented some design suggestions to further update AnhörigCare. After which we conducted design workshops with caregivers as a means to involve them in the design of AnhörigCare and finally a scenario-based user testing.

Based on the design workshops and user testing, the final design of AnhörigCare will be created. Here are some initial screenshots of AnhörigCare.

Watch this space for upcoming articles on this research!

Further Readings

Oinas-Kukkonen, H., & Harjumaa, M. (2009). Persuasive systems design: Key issues, process model, and system features. Communications of the association for Information Systems, 24(1), 28.