Author: shweta

NordiCHI Workshop – Call for Participation

22 June 2024 / shweta

Design Methods in Connected Health

We are excited to invite you to our interactive workshop, which will explore and advance design methods for Connected Health applications.

Full day on 13 October 2024, On-site at Ekonomikum, Uppsala University

The Design Methods in Connected Health workshop aims to bring together researchers, practitioners, and designers in eHealth to explore innovative design approaches and philosophies that can enhance the user experience, accessibility, and overall effectiveness of electronic health technologies. Connected health is a multifaceted concept encompassing technology to improve healthcare delivery and patient outcomes. Design methods are processes and tools for creating effective user experiences in technology development.

This workshop will explore diverse design approaches from various fields, including Human-Computer Interaction (HCI), Information Systems (IS), Health Informatics, and Healthcare.

It aims to foster the exchange of ideas and methodologies across these domains. The aims and objectives include

to explore the diverse design methods in the context of eHealth applications,
to discuss the impact of design on user engagement, and overall health outcomes,
to share best practices and case studies of eHealth design implementations,
to foster collaboration between researchers and practitioners for future advancements in eHealth design, and
to collaborate on drafting a joint paper for a scientific journal, drawing upon the collective insights gained.

The workshop will explore design methods, analyzing their strengths and weaknesses to determine the most suitable approach for different situations. Through a mix of presentations, group discussions, and collaborative activities like a gallery walk (an activity where participants rotate through stations to evaluate and discuss ideas), participants will engage in a dynamic learning experience. The workshop culminates in a collaborative effort to draft a joint paper for a scientific journal, drawing upon the collective insights gained.

The workshop will be in person and will feature an introduction to various design practices used in the eHealth field using a fishbowl discussion method. This will be followed by discussions on these philosophies using an interactive method called Gallery Walk, which is an activity where participants rotate through stations to evaluate and discuss ideas. This is followed by a wrap-up session.

Who Should Attend?

Researchers in design and Connected Health.
UX designers specializing in Connected Health projects.
Healthcare professionals interested in developing Connected Health solutions.

What to Expect:

Interactive Sessions: Participate in engaging discussions and a “gallery walk” to critically assess and compare different design methods.
Collaborative Paper: Collaborate with other attendees to co-author a paper intended for publication in a scientific journal, leveraging the collective expertise and insights acquired during the workshop.
Sharpen Your Skills: Improve your understanding of Connected Health design methods and acquire actionable knowledge to create user-centric Connected Health solutions.

Submission

The submission should be a maximum of 3 pages long.

Format: Please use the old SIGCHI extended abstract format.
Title and Author Information: Clear and descriptive title of the submission. Name(s), affiliation(s), and email address(es).
Abstract: 100-150 words. A brief overview of the design method, its context, and the key takeaways.
Introduction: Provide background information and relevance of the design method to Connected Health. Outline the specific areas or challenges or issues the method addresses in Connected Health.
Design Method Description: Describe the design method in detail. Outline the steps, tools, and techniques involved. Mention any theoretical or conceptual frameworks underpinning the method.
Application and Context: Describe a specific use case or example where the design method was applied. Provide context about how the method was implemented, including settings, participants, and any technological tools used. Discuss any challenges encountered during the application of the method.
Outcomes and Lessons Learned: Summarize the outcomes or results achieved through the application of the design method. Share key insights or lessons learned from the experience. Discuss how the design method impacted user engagement, accessibility, or health outcomes.
Discussion: Analyze the strengths and weaknesses of the design method. If applicable, compare with other design methods used in similar contexts. Suggest potential improvements or future applications of the method in Connected Health.
Conclusion: Recap the key points of the submission. Propose next steps for research or practice in Connected Health design.
Appendices (Optional): Any supplementary material, such as diagrams, detailed tables, or screenshots of the design method in action.

Important Dates:

Deadline for Abstract Submission – 10 August 2024
Notification of Acceptance – 20 August 2024
Workshop Date – 13 October 2024

Email your submissions to: Shweta Premanandan (shweta.premanandan@im.uu.se), Awais Ahmad (awais.ahmad@it.uu.se)

Workshop Organizers:

Åsa Cajander, Department of Information Technology, Uppsala University (asa.cajander@it.uu.se)

Sofia Ouhbi, Department of Information Technology, Uppsala University (sofia.ouhbi@it.uu.se)

Shweta Premanandan, Department of Informatics and Media, Uppsala University (shweta.premanandan@im.uu.se)

Awais Ahmad, Department of Information Technology, Uppsala University (awais.ahmad@it.uu.se)

E-Coaching for Informal Caregivers: Building Resilience and Well-being

11 September 2023 / shweta

As we navigate through the complex experience of caregiving, it is often the informal caregivers, such as close friends or relatives, who become the unsung heroes of caregiving at home. These caregivers are the ones who provide the much-needed support and assistance that patients require to live life with some semblance of normalcy.

For informal caregivers, providing care for a loved one can be emotionally, physically, and mentally challenging. They often have to adapt to a new role as the primary caregiver, while also managing their own lives and responsibilities. Consequently, caregiving can take a toll on these caregivers’ well-being, with many experiencing stress and burnout. Interventions designed to provide support to these caregivers are thus crucial. To this end, our recent study identified important unmet needs of informal caregivers and provided design suggestions for a persuasive e-coaching application using the persuasive system design (PSD) model. The PSD model offers a systematic approach to designing IT interventions.

Using a qualitative research approach, we interviewed 13 informal caregivers and conducted a thematic analysis of the data. From this analysis, six needs were identified: monitoring and guidance, assistance in navigating formal care services, access to practical information without feeling overwhelmed, a sense of community, access to informal support, and the ability to accept grief. These needs formed the basis for suggested design features in an e-coaching application, using the PSD model.

However, we found that some needs could not be mapped using the existing PSD model. As such, we adapted the model to better address the needs of informal caregivers.

By identifying the needs of informal caregivers and providing design suggestions for an e-coaching application, this study offers support and hope for those navigating the challenging role of caregiving. The suggestions for e-coaching applications using the PSD model have the potential to ease the caregiving burden, as well as provide caregivers access to the support and resources they need to provide better care, which is an essential factor in improving both the caregiver’s well-being and the overall quality of care provided to patients. This study highlights the importance of providing support to informal caregivers and demonstrates the potential of technology-based interventions to improve caregivers’ lives. With further development and refinement, e-coaching applications designed based on the PSD model could become valuable tools for supporting and empowering informal caregivers.

Designing Persuasive eCoaching Application for Informal Caregivers in Sweden: My work in ENTWINE

20 April 2023 / shweta

As I sit down to reflect on my experience with ENTWINE Informal Care, I am filled with gratitude for the opportunities that this Marie Skłodowska Curie Innovative Training Network (MSCA-ITN) funded by the European Union Horizon2020 has provided me. It’s been a journey of growth, learning, and collaboration that has impacted my personal and professional life in ways I couldn’t have imagined. The program began in March 2019, but my journey with the ENTWINE project began in October 2019 when I moved to the beautiful island of Gotland in Sweden. I was thrilled to be a part of this program as informal caregiving was already interesting to me personally, given that I had been an informal caregiver for my father for over a year. So, I have a personal motivation to work in this area. I am also interested in the field of designing IT systems, and I was delighted to find that these two interests aligned so well in my project in ENTWINE.

One of the most exciting aspects of ENTWINE was the opportunity to work with other PhD students hosted across five different countries in Europe. You may read more about ENTWINE and the research done here. The cohort was diverse, and we all brought our unique experiences and perspectives to the table. The training courses offered through ENTWINE were invaluable in helping us develop the skills and knowledge needed to conduct high-quality research in the field of caregiving. We received training in areas such as caregiving, persuasive designing, positive technology research methods, entrepreneurship, and many more. The courses were rigorous and challenging, but they were also fun and engaging. It was clear that the program coordinators had put a lot of effort into designing a curriculum that would equip us with the skills and knowledge we needed to contribute positively in our respective fields. Another highlight of the program was the opportunity to work with multiple industry and academic partners. We had the chance to discuss our work and learn from them through dedicated research secondments. My secondments were at the University of Twente and the University of Oulu, where I spent three months each. These secondments helped shape my PhD and helped form good collaborations.

AnhörigCare: An eCoaching Application for Informal Caregivers in Sweden

My PhD work focuses on designing a persuasive eCoaching application (AnhörigCare) for informal caregivers in Sweden. ‘AnhörigCare’ means caring for ‘anhöriga’, the Swedish word for relatives. Informal caregivers are individuals who take care of their sick family members or friends suffering from a long-term illness. Caregiving can be difficult and can affect the well-being of the caregiver and they often experience stress and anxiety. As a result, my research focuses on designing an eCoaching application called AnhörigCare for caregivers in Sweden to support them in their caregiving activities and assist them in self-care.

‘AnhörigCare’ means caring for ‘anhöriga’, the Swedish word for relatives.

Persuasive System Design

AnhörigCare was designed using the Persuasive System Design (PSD) model. The PSD model is a comprehensive framework created to assist in designing systems that can impact users’ behavior. It offers designers a methodical approach to designing persuasive IT applications that are tailored to the specific needs of caregivers, making them more effective in assisting them to achieve their objectives. It also presents a structured design strategy for creating appealing and practical interventions. Additionally, the PSD model offers organized design principles that can be utilized by designers. This model proposes 28 design principles grouped into four dimensions: primary task support, dialogue support, credibility support, and social support. The first dimension, primary task support, aims to assist users in accomplishing their intended behavior. The second dimension, dialogue support, employs design principles that encourage users through feedback and interaction with the application. The third dimension, credibility support, employs techniques that enhance the application’s perceived credibility and trustworthiness by the user. The fourth and final dimension, social support, uses methods to leverage social influence (illustrated in the figure below).

The Design Process

AnhörigCare aims to provide access to practical information, access to formal services related to caregiving, and access to an online forum that can connect caregivers with each other to feel part of a community. This figure illustrates the activities in this project to design the final version of AnhörigCare.

We started with a review of literature. The extant literature points to access to information regarding caregiving, access to formal services to assist caregivers, feeling of community, words of acknowledgment and encouragement, self-care, and informal peer support as major needs of caregivers. The descriptions of their needs were compared with the persuasive design principles from the PSD model. Based on this match, design principles was chosen to meet their needs, creating the first version of AnhörigCare. Expert evaluations were then conducted on this version and changes to navigation and presentation of content were made. In the next step, we interviewed caregivers in Sweden to elicit their needs for an eCoaching application. Based on these needs we presented some design suggestions to further update AnhörigCare. After which we conducted design workshops with caregivers as a means to involve them in the design of AnhörigCare and finally a scenario-based user testing.

Based on the design workshops and user testing, the final design of AnhörigCare will be created. Here are some initial screenshots of AnhörigCare.

Watch this space for upcoming articles on this research!