In the digital age of healthcare, why do some patients engage with electronic health records (EHRs) while others opt out? A study led by Irene Muli with Åsa Cajander from HTO and others explore this question. Conducted seven years after Sweden introduced patient-accessible electronic health records (PAEHRs), the research reveals both progress and persistent gaps in adoption.

The study found that while 86% of patients were aware of PAEHRs, 23% chose not to read their records. Common reasons included feeling they didn’t need to or being satisfied with information from their doctor. Meanwhile, readers primarily sought a health overview or followed up on healthcare visits. A digital divide emerged, with older adults, single individuals, and those with lower information literacy less likely to engage, while smartphone access significantly increased use.

Key Takeaways for Healthcare Providers

Barriers like portal usability and digital literacy hinder PAEHR adoption. For healthcare professionals, simple actions—such as guiding patients during visits—can improve uptake. Targeted support for older or less tech-savvy patients is essential to ensure equitable access.

The Swedish experience highlights opportunities for other countries: usable portals, better training, and promoting the benefits of digital tools. By addressing these barriers, we can make healthcare more inclusive and empower all patients to take charge of their health.

To dive deeper, the full paper is accessible here.